Brett Stelmaszek has curated a following of technology and hardware lovers over the years from the UFD Tech channel. Now, he’s racing across the country in hopes that his audience can help him find a cure for his child.
UFD Tech viewers loved Brett’s hardware videos, but they also banded together around his family. Emmit, his four-year-old son, suffers from a rare genetic disease called SynGAP1. Because of this disease, he has endured medically resistant seizures from the time he was six months old and requires round-the-clock care.
Fortunately, there is hope in funding research for medications and therapies for Emmit and other children like him. That’s why Brett is asking for all the support he can in his Cannonball for the Cure stream. We’re proud to help sponsor, but let’s talk about what this is really about; real people in need of real help.
New York to LA: The Race for 100k
SYNGAP1 is a surprisingly common genetic disorder, with as many as 4 in 10,000 people affected. The condition can affect many traits, including vision, speech, intellectual ability, and more. Care for SYNGAP1 is expensive, and often constant. While there is no current cure, Brett’s goal is to raise $100,000 for The Syngap Research fund, a 501(c)(3) public charity with a mission to, “improve the quality of life of SYNGAP1 patients through the research and development of treatments, therapies and support systems.” With new treatments and therapies on the horizon, every bit of funding helps!
The Cannonball Run Challenge is traditionally a race from Red Ball Garage in New York City, NY to the Portofino Hotel in Redondo Beach, CA. Brett isn’t going for any records, but he is planning to live-stream his 2,900 mile run in his Tesla Model X, while offering lots of tech-related antics and giveaways (including a top-of-the-line REVOLT 3 system from us). The estimated travel time is about 45-60 hours to complete the entire journey.
How Can I Help?
Tune in to the stream on UFD Tech’s Youtube or Twitch Channels at 9AM October 6th to watch Brett make his way across the country, and share the stream with your friends! You can also click here to read more about the Cannonball, and make donations to the Syngap Research Fund.